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The focus of the California Cancer Registry's Scientific Conference for 2010 will be uses of cancer registry data, and how registry databases can be enhanced to better serve the needs of cancer surveillance research and public health policy. The program will present innovative approaches to population-based cancer research and will focus on the work of researchers and public health professionals.
Agenda:
Monday, May 3, 2010
- 1:15 - 1:30: Welcome and Introduction
- Kurt P. Snipes, MS, PhD
- Chief, Cancer Surveillance & Research Branch,
- California Department of Public Health
Session I: Expanding CCR Data Through Linkages With Other Data Sources
- 1:30 - 2:15: Use of OSHPD Data in Cancer Control and Research
- Jonathan Teague, MS
- Starla Ledbetter, MHSA, RHIA, PMP
- California Office of Statewide Healthcare Planning and Development (OSHPD)
- 2:15 - 3:00: SEER-Medicare Data: Potential and Challenges
- Joan Warren, PhD
- Epidemiologist, Health Services, and Economics Branch, Applied Research Program, National Cancer Institute
- 3:00 - 3:15: BREAK
- 3:15 - 4:00: Cancer Care Delivery in Medicaid
- Deborah Schrag, MD, MPH
- Dana Farber Cancer Institute, Boston, MA
- 4:00 - 4:45: Geographic Data and Confidentiality Issues
- Andrew Curtis, PhD
- Associate Professor of Geography, University of Southern California
- 5:00: Social Networking Gathering
Tuesday, May 4, 2010
- 7:15 - 8:15 Continental Breakfast
Session II: Exploring New Ways: Creative Research Projects Using Cancer Registry Data
- 8:15 - 9:00: Cancer Incidence and Mortality in California Agricultural Workers
- Paul Mills, PhD
- University of California, San Francisco
- 9:00 - 9:45: Use of SEER-Medicare Data in Cancer Treatment and Outcomes Research
- Sharon Giordano, MD, MPH
- University of Texas, M.D. Anderson Cancer Center
- 9:45 - 10:30: Multilevel Analysis in Cancer Disparities Research
- Jarvis Chen, ScD
- Research Scientist, Harvard School of Public Health
- 10:30 - 10:45: BREAK
- 10:45 - 11:30 The Decennial Census and the American Community Survey (ACS): Comparability and Challenges
- Linda Clark
- Seattle Regional Census Center
- 11:30 - 12:15 Cancer and Pregnancy Outcomes
- Anne O. Rodriguez, MD
- University of California, Davis
- 12:15 - 1:30: HOSTED LUNCH
Session III: Beyond Surveillance: Why We Matter and How to Market the Value of Cancer Registries
- 1:30 - 2:15: California Bio-Repository Research Network Pilot Project
- Margaret McCusker, MD, MPH
- Cancer Surveillance & Research Branch, California Department of Public
- Health
- 2:15 - 3:00: Shared Resources: Creating Successful Collaborations Between the CCR and University Cancer Centers
- Monica Brown, PhD, MPH
- California Cancer Registry, Public Health Institute
- Christiana A. Clarke, MPH, PhD
- Cancer Prevention Institute of California
- 3:00 - 3:45: The Critical Role of Public Policy in Promoting Public Health: Opportunities for Cancer Control
- Harold Goldstein, DrPH
- Executive Director, California Center for Public Health Advocacy
- 3:45 - 4:00 Closing Remarks
- Janet Bates, MD, MPH
- Chief, Cancer Surveillance Section, California Department of Public Health
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Speakers
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Andrew Curtis, PhD
Associate Professor of Geography, University of Southern California
Andrew Curtis is in the Department of Geography and affiliated faculty with American Studies and Ethnicity at the University of Southern California. Prior to this he was Director of the World Health Organization's Collaborating Center for Remote Sensing and GIS for Public Health (WHOCC) at Louisiana State University. His research interests are centered around the geography of health and hazards, with a particular emphasis on vulnerability, spatial analysis and developing new methods of fine-scale (neighborhood) geospatial data collection. In 2005 after the landfall of Hurricane Katrina, he and his WHOCC lab helped with geospatial support for search and rescue operations in the Louisiana State Emergency Operation Center. He continues to work on various Hurricane Katrina recovery projects. Current research in California includes the spatial analysis of diabetes, sexually transmitted disease, and tuberculosis in Los Angeles County. A concurrent research theme with all of these projects is the preservation of confidentiality in spatial research.
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Anne O. Rodriguez, MD
University of California, Davis
Dr. Rodriguez received her medical and undergraduate degrees with honors at Northwestern University and completed her residency in Obstetrics and Gynecology at the University of North Carolina at Chapel Hill. She then completed a three year fellowship in Gynecologic Oncology at the University of Miami/ Jackson Memorial Hospital. Since is currently Associate Professor of Obstetrics and Gynecology at the University of California, Davis, School of Medicine and also maintains an active clinical practice in gynecologic oncology. She is fellowship program director for the UC Davis fellowship in gynecologic oncology and is active in multiple research endeavors. She has a special interest in complementary medicine and is trained in medical acupuncture.
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Christiana A. Clarke, MPH, PhD
Cancer Prevention Institute of California
Dr. Clarke was trained as an epidemiologist and has research ongoing in four general areas: 1) breast cancer occurrence and causes, 2) occurrence and causes of lymphomas and other lymphoid cancers, 3) immunologic and viral causes of cancer, and 4) cancer surveillance.
In breast cancer research, Dr. Clarke's work has described how incidence has varied over time and place, especially in the Bay Area. She and colleagues at Kaiser Permanente were the first to describe the plummet of breast cancer rates in 2002 after many women stopped taking hormone therapy. She is also leading several research efforts interviewing women to uncover possible immunologic causes of breast cancer, including environmental factors associated with immune system development and immune genes.
Dr. Clarke's work in the lymphoid cancers emphasizes the causes and outcomes of Hodgkin lymphoma and the many subtypes of non-Hodgkin lymphoma. Her dissertation research described patient survival after HL in the general population and with respect to the presence of the Epstein-Barr virus. With Dr. Sally Glaser, she has examined infectious, reproductive, social class and other risk factors for HL in women. In addition to describing NHL occurrence in the U.S., she has conducted several methodologic studies to improve the surveillance and study of specific NHL subtypes.
As an Associate Director of the Surveillance Research group at NCCC, Dr. Clarke and her colleagues monitor changes in cancer incidence and survival patterns among various populations, particularly those defined by geography, race/ethnicity and socioeconomic status. She and her team use increasingly sophisticated resources and develop new methodologies to more effectively and meaningfully describe cancer occurrence and outcomes.
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Deborah Schrag, MD, MPH
Dana Farber Cancer Institute, Boston, MA
Dr. Deborah Schrag received her medical degree from Columbia University College of Physicians and Surgeons in New York and her residency in Internal Medicine at Brigham and Women's Hospital in Boston. She did her fellowship in Medical Oncology at Dana-Farber Cancer Institute. She obtained a Masters in Public Health from the Harvard School of Public Health and joined the staff of DFCI and Brigham and Women's Hospital for two years before moving to Memorial Sloan-Kettering Cancer Center where she has focused on health services research while maintaining an active GI medical oncology practice. In 2008, she returned to the Dana-Farber Cancer Institute and Brigham and Women's Hospital and Harvard Medical School. Her research focuses on technology diffusion, quality of cancer care and comparative effectiveness. Her current focus is on evaluating cancer care for patients insured by state Medicaid programs. She is a Member of the Board of Directors of the American Society of Clinical Oncology and a Director of the Oncology Section of the American Board of Internal Medicine.
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Harold Goldstein, DrPH
Executive Director, California Center for Public Health Advocacy
Harold Goldstein, DrPH is the Executive Director of the California Center for Public Health Advocacy, which he founded in 1999. CCPHA is a nationally recognized leader in advocating for public policies to address the social, economic, and community conditions that perpetuate the obesity epidemic. CCPHA has lead statewide campaigns resulting in enactment of state laws getting soda and junk food out of schools, getting first-ever funding for school physical education, and establishing the nation's first state menu labeling law. Harold has a Bachelors degree in physiology from UC Berkeley and both Masters and Doctorate degrees in public health from UCLA.
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Jarvis Chen, ScD
Research Scientist, Harvard School of Public Health
Jarvis T. Chen, ScD, is a research scientist in the Department of Society, Human Development, and Health at the Harvard School of Public Health. A social epidemiologist by training, his research focuses on racial/ethnic and socioeconomic disparities in health, with a special interest in developing methodologies for analyzing multilevel and geospatial data. With his colleague, Dr. Nancy Krieger, he has published extensively on the use of geocoding and area-based socioeconomic measures for health disparities research as part of the Public Health Disparities Geocoding Project. Most recently, they have applied this methodology to analyze neighborhood disparities in mortality in Boston, spatiotemporal trends in the socioeconomic disparity in breast cancer incidence rates in California, racial/ethnic and socioeconomic disparities in estrogen receptor status, and recent trends in breast cancer incidence rates in the wake of the Women's Health Initiative study. A common thread in thi s research is an interest in using cancer surveillance data in creative ways and promoting closer collaboration between academic researchers, cancer registries, and community health advocates. As part of the NCI-funded community network project, MassCONECT (Massachusetts Community Network to Eliminate Cancer Disparities Through Education Research and Training), Dr. Chen developed small area maps to communicate racial/ethnic and socioeconomic disparities in cancer incidence and mortality in Massachusetts communities.
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Joan Warren, PhD
Epidemiologist, Health Services, and Economics Branch, Applied Research Program, National Cancer Institute
Joan Warren, PhD, has been an Epidemiologist in the Health Services and Economics Branch of the Applied Research Program since 1998. Dr. Warren received her BS in Nursing from Georgetown University and worked for 10 years in a variety of acute care and community settings prior to returning to graduate school. She received her PhD in Health Policy from the University of Maryland in 1989. In that same year, she joined the Epidemiology Branch in the Office of Research at the Center for Medicare and Medicaid Services (then HCFA). During her eight years at CMS, she worked extensively with Medicare claims, learning how to use these data for a range of health services research projects. Upon coming to NCI, she assumed responsibility for the management of the SEER-Medicare data, a file that links Medicare eligible persons in the SEER data with their Medicare claims. Dr. Warren's research has focused on the use of secondary data, such as the SEER-Medicare files, to assess patterns, outcomes, and costs of care. She has also worked extensively with researchers from government and academic settings to promote standardization of measures and methods using secondary data. Dr. Warren has published numerous papers in these research areas. She serves as NCI Program Director for the Program Announcement "Using Health Claims Data for Cancer Surveillance", which provides support for projects using the SEER-Medicare and related data sources
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Jonathan Teague, MS
California Office of Statewide Healthcare Planning and Development (OSHPD)
Since 2003 Mr. Teague has managed the Healthcare Information Resource Center within the California Office of Statewide Healthcare Planning and Development, in the state's Health and Human Services Agency. As a section manager at OSHPD, located in Sacramento, California, he oversees the dissemination, in print and electronic form, of data from healthcare facilities licensed by the State of California, the development of OSHPD data products and the handling of researchers' requests for confidential data. He has a Bachelor's Degree in Liberal Arts from St. John's College in Santa Fe, New Mexico and a Master's Degree in Community and Regional Planning from the University of New Mexico. Prior to working at OSHPD, he was an energy regulatory policy analyst for the California Department of General Services |
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Linda Clark
Seattle Regional Census Center
Linda began her census career in the 1970s as a Special Census Supervisor, supervising data collection operations for more than two dozen cities and counties in California under the direction of the Department of Finance. In 1980 and again in 1990, Linda worked on the Decennial Census as a Regional Technician in the Los Angeles region of the Census Bureau.
Census 2000 decennial operations wooed Linda back in 1998, this time to the Seattle region, where she served as Area Manager for seven local census offices in San Francisco, San Mateo, and Alameda counties. When Census 2000 ended Linda continued with the Census Bureau as a Partnership and Data Services Specialist, conducting more than 100 data workshops in Washington, Oregon, Alaska, and Northern California over a two-year period.
After four years as a Team Leader in Decennial Recruiting Branch at Census Bureau Headquarters in Washington, D.C., Linda returned to the Seattle region as the Information Services Specialist, the position she holds today. |
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Margaret McCusker, MD, MPH
Cancer Surveillance & Research Branch, California Department of Public Health
Dr. Margaret McCusker is a Medical Officer in the Cancer Surveillance and Research Branch of the California Department of Public Health, where she has worked since March 2007. She is a graduate of the University of Maryland Medical School in Baltimore Maryland, where she also completed a Preventive Medicine residency. Dr. McCusker served as an Epidemic Intelligence Service Officer for the Centers for Disease Control and Prevention in Austin, Texas from 2002 to 2004. Dr. McCusker is board certified in Public Health and General Medicine and a Fellow of the American College of Preventive Medicine.
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Monica Brown, PhD, MPH
California Cancer Registry, Public Health Institute
Dr. Monica Brown serves as a Regional Cancer Epidemiologist with California Cancer Registry, for the North, Sacramento and Tri-County Regions. She has had a long interest in translating cancer surveillance data into useful information for the public, cancer research and prevention. Dr. Brown received her PhD in Public Health Epidemiology from the joint doctoral program of San Diego State University's Graduate School of Public Health and the University of California, San Diego in 2001.
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Paul Mills, PhD
University of California, San Francisco
Paul Mills is a cancer epidemiologist with an interest in occupational and environmental exposures as well as gene by environment interactions in cancer causation. He has also studied diet nutrition and cancer and cancer incidence in the south and Southeast Asian populations in California. He is currently Associate Adjunct Professor and Associate Chief of Medicine at the University of California, San Francisco, Fresno Medical Educational and Research Program. He has been affiliated with the California Cancer Registry since 1995 and continues to serve as a regional epidemiologist in the San Joaquin Valley. He has also worked as a research epidemiologist at the National Institute for Occupational Safety and Health (1993-1995). Between 1984 and 1993 he was on the faculty at Loma Linda University. Between 1981 and 1984 he was an epidemiologist at the University of Texas M.D. Anderson Cancer Center. He holds a Ph.D. (epidemiology) from the University of Texas Health Science Center at Houston. He also has an M.P.H. (epidemiology) and an M.S. (Environmental Health) from the University of Minnesota School of Public Health. |
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Sharon Giordano, MD, MPH
University of Texas, M.D. Anderson Cancer Center
Sharon Giordano is an Associate Professor with tenure at The University of Texas M. D. Anderson Cancer Center in the Department of Breast Medical Oncology. Dr. Giordano also serves as a Vice-Chairperson on M. D. Anderson's Institutional Review Board IV, a federally-mandated administrative body established to protect the rights and welfare of human subjects recruited to participate in research activities.
Dr. Giordano received her undergraduate degree from Yale University and graduated Summa Cum Laude and With Distinction in Biology. She then obtained her M.D. from The Johns Hopkins School of Medicine and was elected into Alpha Omega Alpha. Her specialty training included an internship and residency in Internal Medicine at The Hospital of the University of Pennsylvania and medical oncology fellowship at The University of Texas M. D. Anderson Cancer Center. She is currently board certified in Internal Medicine and Medical Oncology.
Dr. Giordano's research interests include breast cancer in the elderly, breast cancer outcomes, and male breast cancer. She is the Principal Investigator on a National Institutes of Health Career Development Award investigating adherence to breast cancer therapy in older women and an American Cancer Society Research Scholar Grant that assesses off-label chemotherapy use in treating cancer. She is an active member of ASCO and AACR.
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Starla Ledbetter, MHSA, RHIA, PMP
California Office of Statewide Healthcare Planning and Development (OSHPD)
With over 25 years of healthcare experience, Ms. Ledbetter serves as the Data Projects Manager in the Data Management Office of the California Office of Statewide Health Planning and Development (OSHPD). Previously, she served as the Project Manager for the Medical Information Reporting for California (MIRCal) project. Ms. Ledbetter represents OSHPD to the Public Health Data Standards Consortium and is an active member of the California Health Information Association, the American Health Information Management Association and the National Association of Health Data Organizations. She is also an adjunct instructor for the Health Information Technology Program and Cosumnes River College. Ms. Ledbetter has a bachelor's degree in Health Information Management from The Ohio State University and holds a Masters in Health Services Administration from St. Mary's College.
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