Data for Researchers
Using CCR Data for Research
CCR shares data with researchers securely and confidentially for approved studies. Individual patient level data may be used to study cancer causes, prevention, treatment, and survival for research studies. Requests should be made by the principal investigator on behalf of the institution with which the investigator is affiliated.
To protect the confidentiality of the data and comply with state law, researchers must submit all required documents to CCR for approval prior to receiving data from CCR. All requestors should read Guidelines to receive California Cancer Registry Data. To learn more about the types of data that can be requested through CCR and obtain request forms, see our section on How to Request CCR Data.
Importance of Cancer Registries
Population-based cancer registries play an important role in public health. The California Cancer Registry provides high quality data to inform efforts to improve cancer prevention and control and to monitor our progress in reducing the burden of cancer in our population. However, funding for cancer registries is currently at risk for dramatic reductions.
To learn more and to advocate for continued funding support for cancer registries, please visit: www.ncra-usa.org/Advocacynowactioncenter.
